The Hummingbird Program provides palliative care to children with complex life-limiting medical conditions and their families. Pediatric palliative care is the active care of a child's body, mind and spirit. The palliative care team also provides support to family members. Care can begin at any time- whether it is when an illness is diagnosed or while a child is receiving curative or life-prolonging treatment.
As a family-centered program, the Hummingbird team helps to involve families in decision-making, offers support and expertise to help with distressing symptoms, and facilitates care in the inpatient, outpatient, and home settings.
Palliative Care is:
- Focused on enhancing quality of life for a child and family.
- Intended to guide and assist child/family in making decisions that are aligned with their identified goals of care
- Provided by an interdisciplinary team that works with the child, family, and the child's doctors to provide an extra layer of support.
- Appropriate at any age and at any stage in a serious illness, and can be provided together with disease- modifying treatment.
- Assistance in improving coordination of care and communication with health care providers.
- Tailored to meet the needs of each individual
Palliative care is NOT:
- Giving up on my child or my patient
- Only for patients with cancer
- For patients with six months or less to live
- Forgoing disease-modifying treatment
- One size fits all
- Taking over care from my primary medical team
- Losing hope
- Withdrawing care
- Hastening or postponing death