Megan's Story


Megan Nickey was diagnosed with Ehlers-Danlos Syndrome (EDS) at three years of age. EDS is a disorder that affects connective tissue. Affected individuals can have easily dislocated joints; loose, thin skin; and extreme fragility of the skin and blood vessels.  Megan has experienced many hospitalizations and surgeries related to her condition. In August of 2008, Megan suffered a life-threatening aneurysm rupture and complications that required extensive surgical intervention and a lengthy stay at Penn State Hershey Children’s Hospital. The Hummingbird Program became involved with Megan and her family to assist with pain and symptom management, to provide much needed emotional support, and to assist with the transition of her care back to their home.

Today Megan is a vibrant 16-year-old young woman, known by many at Penn State Hershey Children’s Hospital for her sense of humor and compassion for others. Megan is a freshman at West Perry high School. When not in school, she loves listening to music. She lives with her mom, dad, two brothers, dog, and four cats. No matter what hurdles come her way, Megan does her best to live everyday to its fullest!